The founders of the National Blood Clot Alliance (NBCA) first met at a workshop at the Center for Disease Control in 2003. The NBCA website has a wealth of information available to visitors in the "Learn More" tab near the top of the site. First up is a "Blood Clot Glossary" of blood clot and clotting disorder terms, including "Economy Class Syndrome", which is the occurrence of deep vein thrombosis in airline travelers that are subjected to cramped conditions and a lack of activity on long haul flights. The "Patient Stories" link under the "Learn More" provides patient-submitted stories of people surprised by their diagnoses of a clotting disorder, and in some cases, misdiagnoses that led to delay of treatment for their clotting disorder. The "News" tab provides news for healthcare providers about blood clot treatment, and blood clot advocacy, as well as information on how to sign up for their newsletter.
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